sharing research findings with research participants and communities

Sharing research findings with research participants and communities.

In occupational and environmental health research, individual, group and community research participants have a unique and vested interest in the research findings. The ethical principles of autonomy, non-maleficence and beneficence are helpful in considering the ethical issues in the disclosure of research findings in occupational and environmental health research. Researchers need to include ...

Sharing the Knowledge: Sharing Aggregate Genomic Findings with Research Participants in Developing Countries

Returning research results to participants is recognised as an obligation that researchers should always try to fulfil. But can we ascribe the same obligation to researchers who conduct genomics research producing only aggregated findings? And what about genomics research conducted in developing countries? This paper considers Beskow's et al. argument that aggregated findings should also be ret...

Disseminating research results to research participants and their communities.

Dissemination of Research Findings to Research Participants Living with HIV in Rural Uganda: Challenges and Rewards

1 Massachusetts General Hospital Center for Global Health, Boston, Massachusetts, United States of America, 2 Mbarara University of Science and Technology, Mbarara, Uganda, 3 Harvard Medical School, Boston, Massachusetts, United States of America, 4 University of California San Francisco, San Francisco, California, United States of America, 5 Ragon Institute of MGH, MIT and Harvard, Boston, Mas...

Considerations and costs of disclosing study findings to research participants.

Research With Cognitively Impaired Participants.

Illnesses that cause cognitive impairment are a considerable health problem in the United States. These include Alzheimer's disease, Huntington's chorea, cerebrovascular disease, psychiatric disorders, chronic alcoholism, and AIDS dementia complex. Illness associated with cognitive impairment may cause great suffering to the affected patients and their families. Research involving individuals w...